We finally had our neurology appointment on Monday. The results of Tabetha Hope's MRI is that she does not have Cerebral Palsy. Instead she has some type of Dystonia. The neurologist put her on some medicine for a trial run to determine if she has a
Dopa Responsive Dystonia. I had not posted til now because i didn't want to get my hopes up. I think I can safely say that after 3.5 days we have noticed big improvements in her movements, from not using her right arm, to favoring her right arm. Tabetha Hope is trying to vocalize words more frequently, her hands are relaxed and opened and she can more easily grasp objects with both hands at the same time and she was able to tip a cup to drink out of it. She gave her daddy a high 5 today with all her fingers on her right hand
opened, she was able to her hands over her head with ease. She is no longer walking with her arm stiff and held up she can walk with it relaxed at her side. We are very excited to see what the long term implications of being on this medicine is.
We finally had our neurology appointment on Monday. The results of Tabetha Hope's MRI is that she does not have Cerebral Palsy. Instead she has some type of Dystonia. The neurologist put her on some medicine for a trial run to determine if she has a Dopa Responsive Dystonia. I had not posted til now because i didn't want to get my hopes up. I think I can safely say that after 3.5 days we have noticed big improvements in her movements, from not using her right arm, to favoring her right arm. Tabetha Hope is trying to vocalize words more frequently, her hands are relaxed and opened and she can more easily grasp objects with both hands at the same time and she was able to tip a cup to drink out of it. She gave her daddy a high 5 today with all her fingers on her right hand
opened, she was able to her hands over her head with ease. She is no longer walking with her arm stiff and held up she can walk with it relaxed at her side. We are very excited to see what the long term implications of being on this medicine is.
4 comments:
Praise God! So happy to hear this awesome news:-) It is remarkable to watch them bloom, isn't it?
Yes it is, Jennifer. It is truly amazing. although we did go another night without sleep. Doctor said to try melatonin.
Brian and Amanda...so this is good news right??? Not having CP is AWESOME but is this new diagnosis something she will deal with forever? I just don't know much about it...but it sounds like good news?!?!
And LOVED the way the girl communicates! ;) She is brilliant!
Oh and melatonin is the drug of choice around here! ;) It works!
Yes, this is good news and yes this is lifelong. She will always have to take medicine and she will still need a lot of therapy to relearn how to do everything. I agree she is one smart cookie.
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